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Now I have ALS, and death will soon overtake me. In fact, I have arranged to take my own life, when the end stage of this disease arrives -- when I can no longer speak or swallow, and have increasing difficulty breathing. I have no intention of either embracing or enduring that kind of experience. How did I come to be friends with death? I have always followed the slant of my own inclination. Never was I confined by a geography, a career or a relationship. I have been an auto mechanic (certified by Volvo), head chef at a New York restaurant, a researcher, president and director of a service for people with Alzheimer's disease, a house-restoration painter, an EMT, a factory worker, a pharmaceutical salesperson, national director of media marketing for a newspaper, student, piano player, lecturer . . . ad astra, ad nauseam. I have had my 15 minutes of Warholian fame, and all of Steven's and two other people's -- and then some. I have been on both hemispheres of the earth. I have indulged in a few other cultures and learned their languages. I have been rich and poor, stressed out and stress-free, depressed and elated. I hold a master's degree in education, but more important I can tell you everything about superconducting. I can get you to understand the wonder of long-bone ossification in a fetus, the way to load spools in making lace by hand, how to bake an apple pie (I was 15th in the bake-off). It's all wonderful to know and exciting to share. To me, it is the getting it that counts. I have loved and failed, and won. After many long, slow accidents, I at last have known those transient moments when she breathes in and I breathe out; when I precede her thought as a cup of tea appears before she asks for it. And she has soothed places in me that I did not know were sore. Once, in Vietnam, on a blisteringly hot morning as cloying fog shrouded the mud flats of the Mekong, an enemy soldier appeared not 20 meters from me. Someone down the line shot him and he fell into the mud with a dull moan. As he lay there in pain his moaning grew and ebbed, while the low fog slowly rolled over him. After 15 minutes, in a soft guttural heave, he died, and as he succumbed something disturbed the fog above him.
-- Nöel David Earley, July 1996
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