Charlestown
A family’s hope undiminished
01:00 AM EST on Tuesday, November 14, 2006

Margaret L. Worthen, 22, earned a bachelor’s degree from Smith College in May.
FAMILY PHOTO

Nancy Smith Worthen, displaying a portrait in her Providence home of her daughter Margaret L. Worthen, a Chariho High School graduate, is hopeful that Margaret will recover from a stroke that struck her days before Smith College’s graduation.
Providence Journal / Steve Szydlowski

Nancy Smith Worthen has decided to keep her daughter Margaret L. Worthen – who has been in a coma since May – alive by whatever means necessary.
Nancy Smith Worthen, with parental pride, debated placing an announcement of her daughter Maggie’s graduation from Smith College in area newspapers.
The family – mother, daughter, and father – are engrained in the fabric of South County, having long lived and worked in its villages and towns.
Any small announcement would be noticed – and smiled upon – by the dozens of people who know Margaret “Maggie” Worthen, worked with her or played at her Carolina home when she was a little girl.
But any announcement, her mother knew, would have to say much more than the college news release, which said, that Margaret L. Worthen, 22, a South County native and Chariho High School graduate, had earned a bachelor of arts degree from Smith College where she was an honor roll student, dorm president, freshman captain of the crew team and Ultimate Frisbee player.
It would also have to say that while Maggie was safe within her dorm room working hard on a final paper, she was stricken by what was apparently a stroke – and has yet to awaken.
“I would have simply sent that press release, but Margaret’s story is more complicated than that,” her mother noted, knowing that many of those who would read such an announcement – Maggie’s grade-school teachers, her gymnastic coaches, her high school friends – would read it unaware of what happened to this young woman before she could accept her college diploma.
They would be unaware that this fresh-faced young woman fell deep into a coma, and has yet to return to the young woman she was, the woman she was becoming.
Any newspaper notice, her mother knew, would have to tell a heartbreaking story.
“But it’s not about pity, it’s about courage,” said her mother. “Here’s a real person and here’s what happened to her.”
Maggie Worthen, rather than bounding from her dorm room that May day in search of friends for a few final days of bonding, rather than preparing to celebrate and accept graduation good wishes and presents on May 21, rather than wearing a black graduation robe along with her college classmates, was rushed to the UMass Medical Center, Worcester, not talking, not breathing on her own.
No one knows how much time passed before she was discovered and taken to the hospital. When Smith College telephoned her emergency family contacts, her father Paul was at his South County home. Her mother Nancy had recently finalized plans to move to Providence where she would be closer to her new job, and had just departed on a trip overseas.
It would take many phone calls to find Nancy, to arrange for her return, from Paris to London, from London to Boston, from Boston to her daughter.
It was a time when all the information her mother had was that her daughter had suffered a stroke.
“Maybe you should wait until you get to the hospital,” Nancy’s friend Dorothy Devine, of South Kingstown, Maggie’s godmother, told her in attempting to convey conflicting information from Worcester.
But during a stopover in London, Nancy made a telephone call to the Massachusetts hospital where her daughter had been admitted. What she discovered was that the healthy girl she left behind for a few days, before expecting to meet up with her again at graduation, had stopped talking, seeing, laughing, walking, running, smiling.
Her mother wanted to know: Could they save her?
“Several doctors told me to let her go,” said Worthen, who, divorced since Margaret was 9 years old, arrived at a hospital where in her absence, Maggie’s father and Nancy’s friends had already gathered to lend the support she would dearly need.
“One doctor told me that the best prognosis he had for her was that she would be in a perpetual vegetative state. Take her off life support, they said.”
That’s what they would do if it were their daughter, Worthen said they told her.
“I argued with that doctor. It doesn’t matter what you think you’d do,” she told them. “I only have one person to consider.”
Worthen has considered that one person these six months hence during every waking moment.
While she had prided herself on giving her daughter choices throughout her young life, Worthen knew that she would have to make this serious choice for her daughter: To keep her alive by whatever means possible.
“We decided it was right to give her every opportunity. She would do everything for me. She wouldn’t have let me go. She would have said, ‘We’re fighting,’” Worthen said.
“I’m going to make the decision that she would want to fight. I guess there’s that fierce mother love.”
That very same love is what has kept her afloat during the ordeal that has taken the family to a multitude of doctors, hospitals, waiting rooms, many miles in one direction, many miles in another, all the while maintaining hope.
Hope that her daughter will recover. That she’ll live an independent life. That she’ll come back. Say a word. One word.
Any word.
“I really don’t know. I have to plan for her future. If she wakes up, she might have physical difficulties. Her eyesight might be affected.”
But on the other hand, “If she wakes up, she might be able to think. For me, that’s the most important thing. It’s an unknown. There’s no way of knowing until she wakes up,” said Nancy.
There have been signs. She has responded to some commands, say both her mother and her father. There have been moments when she opened and fluttered her eyes.
Maggie’s parents take turns visiting, reading to her, playing music. Family friends and college friends visit, too, doing some of the same.
Her father has been reading Lonesome Dove to her because “she had borrowed it from me and was going to read it after she graduated,” said Paul Worthen, who now lives in Charlestown.
Maggie’s godmother, Dorothy visits and sings “old Methodist hymns, which is really crazy because I have a terrible voice. I’ll massage her hands, I’ll spend all day there. When I leave, I weep.”
Devine tells of the circle of friends that includes Nancy and Maggie Worthen, and how when gathering with the same friends for different events, Maggie would make sure that everyone – most importantly, a young friend with Down’s syndrome – was included.
“At every single party, she would play cards or something with him. That’s her character. And he adored her.”
Not having children of her own, Devine said Maggie is something of the daughter she never had.
“I watched her grow up and I would go to things. I went to see her play Auntie Mame, and she was fabulous. She was tall and slender and didn’t wear a lot of makeup and had the same boyfriend since high school. He loves her deeply and goes to see her every Wednesday.”
Maggie Worthen hoped to spend the summer with her boyfriend, Josh Guleserian, 23, of Carolina, and work at the South Kingstown animal shelter while preparing to apply to veterinary school. When Josh visits Maggie each week, he is convinced that she is aware of his presence.
“She has been squeezing my hand ever since this has happened. I know she knows it’s me. I kiss her and she kisses me back.”
Josh and Maggie met on the school bus when she was a freshman at Chariho High School and he was a sophomore. “We have been dating for nine years this December,” he said.
Josh also said he is “one-hundred percent sure” she’ll come out of this, and they’ll be together, married as they had planned.
“I have to stay strong for her. She’d do it for me. It’s definitely not easy. I work 40 hours a week and go to school, but I’d do anything in the world for her.
“I don’t think anyone in the universe has ever felt love like we do.”
Though she has been mostly unresponsive and immobile since that day in early May, and though the outlook for her changes almost daily, her mother wrestles with her own uncertainties, ranging from finding the energy to unpack boxes from the Carolina home she shared with Maggie – now that she is living in Providence – to preparing a list of Christmas card recipients and figuring out a way to tell people far off of these sad circumstances.
She recently returned to South County on Election Day to cast her ballot and bumped into a former neighbor.
“She had no idea about Margaret. I realized that a lot of people don’t know.”
Nancy has also returned to work in Providence’s Ready to Learn where she is codirector of AmeriCorps, and wonders about that graduation notice in area newspapers, telling of a daughter’s achievements, despite the ambiguous nature of her future.
Why not now?
Why not indeed?
Margaret L. Worthen, born to Nancy and Paul Worthen in Westerly on Feb. 6, 1984, went to Richmond Elementary School, Chariho’s middle and high schools, played volleyball, was an honor roll student, was a star high school actress and proud member of the Future Farmers of America.
“She really liked physical things,” said her mother, listing participation in horseback riding, cheerleading, gymnastics, working at the Y, even enrolling in Outward Bound, the two-week outdoor adventure which tested her survival skills.
“She met the challenge,” recalled her mother.
She met it at school, as well, where “she took hard classes,” worked at raising her SAT scores by enrolling in a prep course, finding her passions in a variety of areas – particularly with animals, and so seriously considered the idea of pursuing veterinary science.
The family, said Worthen, always had pets, “cats, dogs, hermit crabs, gerbils, a parakeet.
“Even then she was thinking about how to take care of animals,” said her mother.
“She would volunteer to work on Christmas,” said AnnMarie Biegner, South Kingstown’s animal shelter manager, who guided Maggie Worthen through several years of volunteer work and summers as a kennel assistant. She hoped Worthen would work for her again during this past summer.
A sense of responsibility in people is diminishing, but I didn’t find that in Maggie. She’s just a good, good kid.
“I still can’t believe it has happened,” said Biegner.
“I just tell Nancy that I foresee a day when Maggie wakes up.”
“They don’t have any idea,” Nancy said, about the reasons why her healthy, athletic daughter, who didn’t smoke or drink and was not overweight, would suffer a stroke.
According to The Centers for Disease Control and Prevention, strokes affect more than 700,000 people each year in the United States; strokes can occur at any age, and are a leading cause of serious long-term disability.
The CDC’s Web site also notes that stroke is the third leading cause of death in the United States and that certain factors seem to put some people at a higher risk for stroke – factors that didn’t appear to exist in Maggie Worthen’s lifestyle.
Not only did she work out regularly, but she also “thought nutrition was really important,” said her mother, recalling with laughter how Margaret “kept notes regarding Power Bars. This is so Margaret.”
Ellen Taxiera, assistant director of Nursing at the Middleboro (Mass.) Skilled Care Center, a Wingate Health Care Home that specializes in head injuries, and where Maggie has lived since late July, said “It usually takes a year to see how the other parts of the brain will take over. It’s only been six months.”
As Taxiera explained it, Maggie suffered a blood clot to the brain, blocking off oxygen for a time period hard to determine. No one knows how long Maggie had been in her dorm room unattended. A lack of oxygen to the brain, she said, usually results in brain damage.
“It’s too early to guess what recovery she’ll make,” Taxiera said.
“Considering the damage she had it is remarkable she is no longer on a respirator. Due to her young age, Maggie has progressed further than expected.”
Her primary doctor, Michael Randon, declined to be interviewed.
In the meantime, Maggie’s friends have strung paper cranes around her room, recognizing the Japanese legend that says if a sick person folds 1,000 paper cranes, the gods will grant her wish and make her healthy again.
Her mother takes comfort in her community of friends, even strangers, who have assisted in many ways, ranging from the flowers sent to her on Mother’s Day by the hotel staff member where she stayed while Margaret was in the hospital, to those who packed up her South County home when it became time to move to Providence.
“People want to help but don’t know how. They are so grateful to do something.”
“It’s been very difficult,” said Maggie’s father. “My friends and people at work have been extremely helpful.”
He credits, too, Smith College, which in the initial, tense days arranged transportation and accommodations for Maggie’s parents while they awaited the outcome.
Nancy said the ordeal has changed her in numerous ways, most notably in getting over asking others for help.
“I know I need help. I have no illusions that I could do this without my friends, the doctors, the nurses. People. People have been so kind and compassionate and so interested in her, so tender with her and with me.”
It has been six months since the 2006 graduating class at Smith College wore blue ribbons in Maggie’s honor as they collected their own diplomas under dark and rainy skies.
Her college friends have kept in touch with Nancy, arranging to visit her daughter, staying involved in many ways, including the Web site caringbridge.com where Maggie has a Web page.
Her mother makes almost daily entries.
“I guess I want to bring awareness to people about brain-injured people and that they each have a story like Maggie’s and mine,” noted her mother, hoping that perhaps old friends will send her daughter cards and greetings.
“It is a story about disability and how each person that you see in a wheelchair, or who has crutches, or who speaks with difficulty or has a hearing aid has a story, and some of the stories cannot be told by the person but must be told by the family.
“It is a story about grieving and loss, for those of us who miss the smart, lively, smiling girl who was my daughter, who has a loving boyfriend and a caring father who also miss her terribly.
“I miss her so much and my heart breaks to think that she will have to live with limitations for the rest of her life. Or that she will not wake up at all.”
Margaret “Maggie” Worthen’s address is 51 Hammond St., Providence, R.I. 02909.
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